![]() ![]() Some states, such as California and Virginia, have state-level laws that give users ownership over their information and whether it is sold to third parties.ĭata brokers trade in other types of information, such as location-tracking data for people who visited Planned Parenthood, which potentially could be purchased by law enforcement or government officials. “We completely understand this anxiety, and we want to reassure you that your health data, particularly any data you track in Clue about pregnancies, pregnancy loss or abortion, is kept private and safe,” Clue co-CEO Carrie Walter said in an emailed statement. Instead, it makes money solely through subscriptions, spokesperson Raneal Engineer said.Ĭoncerned customers have been reaching out to another health app, Clue, developed by a company based in Berlin. The company promises its users that it does not do any advertising or selling of data to third parties. The period-tracking app Cycles, which is owned by Swedish company Perigee, falls into this category. If they do so, the FTC can then hold the companies accountable for those commitments, said Deven McGraw, Invitae’s head of data stewardship and the former deputy director for health information privacy at the Department of Health and Human Services Office for Civil Rights. via their privacy policies and terms of services. Consumers also have the right to have their online data erased.Ĭompanies have the option of extending those rights to people living in the U.S. Ovia’s roughly 10,000-word privacy policy details how the company may share or sell de-identified health data and uses tracking technologies for advertisements and analytics on its free, direct-to-consumer version.įor European residents, companies must comply with the stricter General Data Protection Regulation, which gives ownership of data to the consumer and requires consent before gathering and processing personal data. People using the employer-sponsored version must currently opt in for this kind of data-sharing. In 2019, Ovia Health drew criticism for sharing data - though de-identified and aggregated - with employers, who could purchase the period- and pregnancy-tracking app as a health benefit for their workers.
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